Studies by Topic

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Adolescent and young adult

• Improving palliative care services for adolescents and young adults with cancer

Advance care planning/Advance directives

• Assessing the efficacy and cost-effectiveness of targeted nurse-led advance care planning interventions among patients with severe respiratory disease in a metropolitan tertiary hospital and in a rural setting
• Enabling consumer participation in end-of-life treatment decisions (Part 1) (198kb pdf)
• Enhancing legal knowledge of medical practitioners to improve the provision of palliative and end-of-life care (263kb pdf)
• Evaluation of the Living Well Dying Well (LWDW) pilot program and the Cradle Coast Connected Care Electronic Health Record (4CEHR) system, Final Report, Department of Health and Human Services Tasmania
• Facilitating discussions on advance care planning in caregivers of cancer patients using the vignette technique (part 1 of 2 part study)
• Facilitating discussions on treatment preferences and advance care planning in cancer patients using the vignette technique
• National Specialist Palliative Care and Advance Care Planning Advisory Services Project (Decision Assist)
• What factors influence the use of advance directives by Baby Boomers in South Australia?
• Withholding and withdrawing life-sustaining medical treatment from adults who lack capacity: The role of law in medical practice

Aged Care

• CareSearch Engagement Activity (264kb pdf)
• The Experience of Punjabi Indians with Palliative Care at Residential Aged Care Facilities: A Regional Perspective (202kb pdf)

Allied Health

• CareSearch Engagement Activity (264kb pdf)
• Speech-language pathology in paediatric palliative care: A scoping review of role and practice
• The experience of refactory breathlessness (176kb pdf)
• The ordinary becomes extraordinary: The occupation of living at the end-of-life (275kb pdf)
• The Role of Speech-Language Pathologists in Palliative Care: Exploring the Issues and Reaching Consensus (242kb pdf)
• Views and experiences of Allied Health professionals about palliative care, and about the CareSearch Allied Health Hub (AHH) and newsletter

Anaemia

• Attitudes to providing blood transfusions in the last 3/12 of life: The views of Palliative care Physicians, Oncologists, Haematologists and PalIiative care nurses

Anorexia

• Randomised, double blind control trial of megestrol acetate, dexamethasone and placebo in the management of anorexia in people with cancer

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Bereavement, grief and loss

• Bereavement Counselling Outcome Assessment Tool (The BOAT Study)
• Mapping Grief Study: The experience of care, grief and adjustment for family members bereaved after a coronial or palliative care death
• Memory making in neonatal end-of-life care
• Older women's experiences of widowhood in the first twelve months following bereavement
• Survey of hospice and palliative care bereavement services in Australia
• The impact on mental health of frequent deaths that occur in high care in aged care settings, on individuals and the resident community
• Who grieves? The patient perspective

Bleeding and haematological

• The development of a model of care for haematology and palliative care

Burnout and self care

• A study to assess the grief experienced by registered nurses and care aides who work in community palliative care and to identify suitable strategies for support 
• Factors Contributing to Job Satisfaction, Dissatisfaction and Burnout for Oncology and Palliative Care Nurses
• The SELF-CARE Study: Self-care in the palliative care workforce, and its relationship to self-compassion for others

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Cancer

• Retrospective and prospective audit of gabapentin and pre-gablin prescribing for neuropathic pain in a major cancer hospital (39kb pdf)
• Retrospective medical record audit and analysis of the clinical journeys of 100 consecutive deaths for any oncology patient at St. George Hospital
• The experience of refactory breathlessness (176kb pdf)
• The ordinary becomes extraordinary: The occupation of living at the end-of-life (275kb pdf)
• The Partners and Caregivers Study: A longitudinal study of the psychosocial outcomes of the partners/caregivers of cancer survivors
• The Supportive Care Needs Survey for Partners and Caregivers of cancer survivors: Development and psychometric evaluation
• Trial of supportive care strategies for cancer patients in NSW (21kb pdf)

Care pathways

• Achieving needs-based end of life services: a prospective, longitudinal study of the pathways for patients with Stage 3-5 Chronic Kidney Disease (30kb pdf)
• Improving end-of-life care at Canossa
• Liverpool Care Pathway project

Carers

• Acceptance and valued-living in palliative care patients, caregivers and significant others
• Bayside Palliative Carers Support Group
• Can the needs of caregivers of patients with advanced cancer be met using a General Practitioner Caregiver Needs Toolkit?
• Caregivers' expectations and experiences of the use of home oxygen in the palliative setting
• CARE-IS Study – Care-IS Trial: A randomised controlled trial of a supportive educational intervention for caregivers of patients with high grade glioma
• CareSearch Engagement Activity (264kb pdf)
• Evaluation of an information booklet for family carers of people with dementia
• Facilitating discussions on advance care planning in caregivers of cancer patients using the vignette technique (part 1 of 2 part study)
• Group education program for family caregivers of home based palliative care patients
• Helping family caregivers of palliative care patients manage their role: Evaluation of a hospital based group education intervention
• Home-based care for advanced cancer patients: the impact on family carers
• How lay carers regard and use the Internet as a source of support information
• Improving end-of-life care at Canossa
• Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial
• Seeing the unseen: an exploration of reluctance to care in lay carers of cancer patients
• The Partners and Caregivers Study: A longitudinal study of the psychosocial outcomes of the partners/caregivers of cancer survivors
• The Supportive Care Needs Survey for Partners and Caregivers of cancer survivors: Development and psychometric evaluation
• Toward the identification and minimisation of depression and psychological distress in family caregivers of people receiving palliative care

Chronic Conditions

• Achieving needs-based end of life services: a prospective, longitudinal study of the pathways for patients with Stage 3-5 Chronic Kidney Disease (30kb pdf)
• Evidence-based, patient-centred clinical decision making in the management of patients with multimorbidity and limited life expectancy: the Australian general practitioner experience (143kb pdf)
• The experience of refactory breathlessness (176kb pdf)

Communication

• A comprehensive discharge planning strategy to enhance hospital-to-home transition for patients with life limiting illness: optimizing communication across primary-secondary settings (16kb pdf)
• A systematic review of patient report of deathbed phenomena
• PEACE study: Preparedness for End-of-life And other Conversations including Euthanasia
• So many questions
• The BASIC-NP Project (Better Assessment, Support and Interdisciplinary Care – Nurse Practitioner) (305kb pdf)
• The VOICE Study: Valuing Opinions, Individual Communication and Experience: Building the evidence base for undertaking patient-centered family meetings in palliative care: A mixed methods study

• Toward optimal facilitation of family meetings in palliative care
• Upfront Family Meetings for Community Palliative Care Services
• Upfront Family Meetings for in-patient Palliative Care Services

Complementary therapy: Music therapy

• Life threatening cancer across the lifespan: Examining the relevance of music to patients and their companions
• Relevance of Peter Mac's staff Christmas choir to patients, visitors, and staff
• The effect of self-selected music on adults' anxiety and subjective experience during their first radiotherapy treatment
• The relevance of music for adolescents and young adults (15-25 years) diagnosed with cancer

Constipation

• Use of Methylnaltrexone for opioid induced constipation in usual clinical setting

COPD

• A qualitative exploration of the needs of patients with severe COPD (chronic obstructive pulmonary disease)
• Epidemiological study of patterns of hospitalisation in patients who die with chronic obstructive pulmonary disease (COPD)
• Informing the development of a model of care for patients with end stage chronic obstructive pulmonary disease (COPD): what ate their care needs and are they being met?
• Managing diabetes at the end of life
• Palliative care -life space assessment (PC-LSA) validation

Creutzfeldt-Jakob Disease

• The Palliative Management of Patients with Creutzfeldt-Jakob Disease (CJD)

Culture and religion

• Identifying the barriers to access to palliative care services by patients from a CALD background: A chart audit of 100 CALD deaths at CHCK
• The Experience of Punjabi Indians with Palliative Care at Residential Aged Care Facilities: A Regional Perspective (202kb pdf)

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Decision making

• Assessing the access and value of online palliative care information resources (261kb pdf)
• A systematic review of effectiveness of decision aids to assist older patients at the end of life
• Designing regulatory systems that are responsive to evolving medical practice at the end of life (174kb pdf)
• Dying in pain: a pilot study
• Enabling consumer participation in end-of-life treatment decisions (Part 1) (198kb pdf)
• Enhancing community knowledge and engagement with law at the end of life
• Enhancing legal knowledge of medical practitioners to improve the provision of palliative and end-of-life care (263kb pdf)
• Evidence-based, patient-centred clinical decision making in the management of patients with multimorbidity and limited life expectancy: the Australian general practitioner experience (143kb pdf)
• IPP-SHR and Redland Hospital Collaboration - Ethical decision making in a health care setting including findings on end of life care
• The BASIC-NP Project (Better Assessment, Support and Interdisciplinary Care – Nurse Practitioner) (305kb pdf)
• What are the decision-making processes that underpin the self-management of persistent pain?
• Withholding and withdrawing life-sustaining medical treatment from adults who lack capacity: The role of law in medical practice

Delirium

• Delirium prevalence, incidence and implications for screening in specialist care inpatient settings: a systematic review
• Prospective study of predictors of the diagnosis of delirium or future development of the delirium: the association between serum anticholinergic levels and diagnosis or future development of delirium in palliative care patients with advanced cancer
• Randomised, control trial of oral risperidone, oral haloperidol, and oral placebo with rescue subcutaneous midazolam in the management of delirium in palliative care inpatients

Dementia

• End of life care for patients with dementia in hospital

Depression

• Toward the identification and minimisation of depression and psychological distress in family caregivers of people receiving palliative care

Diabetes

• Managing diabetes at the end of life

Dyspnoea

• A double-blind, randomised, placebo-controlled titrated dose pilot study of sertraline in people with refractory breathlessness (12kb pdf)
• A multi-centre randomised double-blind controlled trial of oxygen versus air for the relief of breathlessness in terminally-ill patients with intractable dyspnoea and Pa02>55mmHg
• A prospective, randomised, placebo-controlled, double-blind, cross-over study of the efficacy of sustained-release low dose morphine in the subjective sensation of dyspnoea due to maximally treated primary pulmonary hypertension in opioid naive participants
• A randomised double-blind multi-site parallel arm controlled trial to assess relief of refractory breathlessness comparing fixed doses of morphine and placebo
• Developing self management strategies to reduce avoidable Emergency Department presentations for chronic refractory breathlessness: a strengths based approach using qualitative methods
• Evaluating novel methods for delivering non-pharmacological interventions for dyspnoea in patients with lung cancer
• Fan activity and breathlessness(FAB)Study
• Opioids in dyspnoea - An open label, prospective, dose ranging effectiveness study of sustained-release opioids in the subjective sensation of dyspnoea in opioid naive patients in the palliative care setting
• Oxygen to relieve dyspnoea in non-hypoxaemic patients with end-stage heart failure (Oxygen-HF)
• The experience of refactory breathlessness (176kb pdf)

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Economics

• Costs of Care search resource
• Futile treatment at the end of life: legal, policy, sociological and economic perspectives
• Withholding and withdrawing life-sustaining medical treatment from adults who lack capacity: The role of law in medical practice

Education and training

• Acceptance and valued-living in palliative care patients, caregivers and significant others
• CARE-IS Study – Care-IS Trial: A randomised controlled trial of a supportive educational intervention for caregivers of patients with high grade glioma
• Development of a statewide coordinated specialist and generalised palliative medicine training program
• Effect of supportive engagement through MOOC participation on death awareness and death attitudes
• Enhancing legal knowledge of medical practitioners to improve the provision of palliative and end-of-life care (263kb pdf)
• Evaluation of the Program of Experience in the Palliative Approach (PEPA)
• Group education program for family caregivers of home based palliative care patients
• Helping family caregivers of palliative care patients manage their role: Evaluation of a hospital based group education intervention
• Implementation of a comprehensive evidence based palliative approach in residential aged care (CEBPRAC)
• Information and communications technologies (ICT), eHealth literacy, individual differences in thinking dispositions and retention and academic performance in postgraduate palliative studies
• Listen Acknowledge Respond
• Palliative care education: Does it influence future practice?
• The development and implementation of an evidence-based palliative care teaching program for hospital junior medical staff (23kb pdf)
• The influence of undergraduate palliative care attachments on medical practice: A qualitative study of junior doctors
• What is the impact of a Flinders University postgraduate palliative care course on the professional lives of alumni and on their ability to change work practice?

eHealth

• Assessing the access and value of online palliative care information resources (261kb pdf)
• Determining eHealth literacy levels
• Evaluation of a Palliative Care Telehealth Service with the Queensland Ambulance Service (QAS) (167kb pdf)
• How lay carers regard and use the Internet as a source of support information
• Improving paediatric palliative care for rural and remote families: A randomised controlled pilot study of videotelephony (41kb pdf)
• Information and communications technologies (ICT), eHealth literacy, individual differences in thinking dispositions and retention and academic performance in postgraduate palliative studies

Ethics

• Accompanying them home : the ethics of hospice palliative care
• Designing regulatory systems that are responsive to evolving medical practice at the end of life (174kb pdf)
• Dying in pain: a pilot study
• IPP-SHR and Redland Hospital Collaboration - Ethical decision making in a health care setting including findings on end of life care

Euthanasia

• PEACE study: Preparedness for End-of-life And other Conversations including Euthanasia

Evidence-based practice

• Costs of Care search resource
• Development of the Stroke Search Filter
• Implementation of a comprehensive evidence based palliative approach in residential aged care (CEBPRAC)
• Palliative care search strategy validation

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Families

• Toward optimal facilitation of family meetings in palliative care
• Upfront Family Meetings for Community Palliative Care Services
• Upfront Family Meetings for in-patient Palliative Care Services

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Futile treatment

• Designing regulatory systems that are responsive to evolving medical practice at the end of life (174kb pdf)
• Non-beneficial treatments (NBTs) in hospital at the end of life

General practitioners

• Can death from chronic life-limiting illnesses be predicted in Australian general practice? A study exploring the feasibility and acceptability of a case finding approach to patients nearing the end-of-life
• Can the needs of caregivers of patients with advanced cancer be met using a General Practitioner Caregiver Needs Toolkit?
• Evaluation of a tool for general practitioners:  Helping Patients And Families Plan For An Expected Home Death:  The GP’s Checklist
• Evaluation of GP webpages of the CareSearch website
• Evidence-based, patient-centred clinical decision making in the management of patients with multimorbidity and limited life expectancy: the Australian general practitioner experience (143kb pdf)
• General Practitioners & Palliative Care Study
• General practitioners' perceptions of their role in cancer care and factors which influence this role
• How do GPs provide palliative care in rural and remote Queensland? (41kb pdf)
• The development and implementation of an evidence-based palliative care teaching program for hospital junior medical staff (23kb pdf)
• Upfront Family Meetings for Community Palliative Care Services

General public

• Effect of supportive engagement through MOOC participation on death awareness and death attitudes

GI obstruction

• A randomised double blind placebo controlled trail of infusional subcutaneous octreotide in the management of malignant bowel obstruction in people with advanced cancer

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Heart failure

• A very public death - Exploring the needs of a person dying of mesothelioma or asbestos related lung disease (36kb pdf)
• Oxygen to relieve dyspnoea in non-hypoxaemic patients with end-stage heart failure (Oxygen-HF)

Hope

• Measuring hope and hopelessness in cancer

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Knowledge translation

• Evaluation of GP webpages of the CareSearch website
• How do clinicians learn about Knowledge Translation? Examining the online opportunities
• Spaced education: As a tool to help translate pain assessment and management evidence into routine cancer care practice
• Spaced education in the specialist palliative care setting: Exploring its potential to improve pain management
• STrategies to decrease pain thrOugh implementing a duel clinical PAIN PATHway. Stop Pain Path Phase 1

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Last days of life

• Application of a clinical typology for terminal restlessness
• Designing regulatory systems that are responsive to evolving medical practice at the end of life (174kb pdf)
• Enabling consumer participation in end-of-life treatment decisions (Part 1) (198kb pdf)
• Last days of life linkage study: Patterns of health services use and experiences of NSW residents in the year prior to death (NSW end-of-life study) (196kb pdf).

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Mental health

• Integrated Mental Health and Palliative Care Task (IMhPaCT)
• Listen Acknowledge Respond

Models of service delivery

• Adelaide Hills Palliative Care Project (National Rural Palliative Care Program)
• A study of the integration of health promotion principles and practice in palliative care organisations
• Caring Communities: evaluation of a national palliative care program
• Development of a statewide coordinated specialist and generalised palliative medicine training program
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Evaluation of the Rural Palliative Care Program
• Northern Hospice Feasibility Study, Final Report, Department of Health and Human Services Tasmania
• Palliative care -life space assessment (PC-LSA) validation
• The BASIC-NP Project (Better Assessment, Support and Interdisciplinary Care – Nurse Practitioner) (305kb pdf)
• The development of a model of care for haematology and palliative Care
• The evaluation of models of community after hours palliative care
• Trial of supportive care strategies for cancer patients in NSW (21kb pdf)
• "What happens after dark?" Improving "after hours" palliative care planning in urban and rural Victoria (37kb pdf)

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Nausea, vomiting

• An audit of the incidence, mechanism, aetiology and management of nausea and vomiting in patients at a comprehensive cancer centre
• A two-stage trial of antiemetic therapy in patients with cancer and nausea not related to anticancer therapy  Study 1: A randomised open label study of guideline–driven targeted antiemetic therapy versus single agent antiemetic therapy
• A two-stage trial of antiemetic therapy in patients with cancer and nausea not related to anticancer therapy.
  Study 2: A randomised controlled double blind study of levomepromazine versus placebo with rescue antiemetics (best supportive care) in patients with refractory nausea
• Randomised, controlled, double blind study of oral methotrimeprazine versus oral haloperidol in patients with cancer and nausea not related to anticancer therapy (Nausea study 3)
• The use of levomepromazine in palliation (TULIP)

Needs assessment

• Achieving needs-based end of life services: a prospective, longitudinal study of the pathways for patients with Stage 3-5 Chronic Kidney Disease (30kb pdf)
• Evaluation of a palliative care needs assessment intervention (14kb pdf)
• Evaluation of the palliative care needs assessment intervention
• Needs based access to specialist palliative care services: Development and preliminary evaluation of a Consumer Toolkit
• Palliative Care Needs Assessment program: Dissemination of the Palliative Care Needs Assessment Guidelines and Needs Assessment Tool: Progressive Disease - Cancer (NAT:PD-C) (14kb pdf)
• Palliative Care Needs Assessment program: Generalising cancer needs based resources to heart failure (14kb pdf)
• Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer (15kb pdf)

Neonatal

• The Praecox Program: Development of a national program to support neonatal palliative care in the clinical area

Non-malignant

• Can death from chronic life-limiting illnesses be predicted in Australian general practice? A study exploring the feasibility and acceptability of a case finding approach to patients nearing the end-of-life
• Objective assessment of the trajectory of the course of illness for end of life non-cancer related diseases - biological, social and environmental determinants
• Patient outcomes in palliative care – a national perspective of malignant and non-malignant diseases

Non-pharmacological

• Evaluating novel methods for delivering non-pharmacological interventions for dyspnoea in patients with lung cancer.
• Fan activity and breathlessness(FAB)Study
• Prescribing considerations for home oxygen use

Nurses

• A phenomenological exploration of the lived experience of malignant wounds from the perspective of patients, carers and nursing staff.
• Factors Contributing to Job Satisfaction, Dissatisfaction and Burnout for Oncology and Palliative Care Nurses
• Linking the parts: - Articulating the role of consultant palliative care nurses in acute hospitals
• Living and dying at home in rural Australia: the district nursing role of advocacy
• Palliative care education: Does it influence future practice?
• Palliative nursing in residential aged care

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Nutrition

• The Psychosocial Impact of Food and Nutrition on Palliative Care Patients and their Carers

Older people

• A systematic review of effectiveness of decision aids to assist older patients at the end of life
• Living and dying at home with dementia: who decides? (22kb pdf)
• National Specialist Palliative Care and Advance Care Planning Advisory Services Project (Decision Assist)
• Palliative care dementia interface: Enhancing community capacity
• Pre-existing risk factors for in-hospital death among older patients could be used to initiate end-of-life discussions rather than Rapid Response System calls: A case-control study
• Residential - Palliative Approach Competency Study (R-PAC Study)
• The Experience of Punjabi Indians with Palliative Care at Residential Aged Care Facilities: A Regional Perspective (202kb pdf)
• Validation of a clinical tool to predict death in older patients presenting at hospital emergency departments
• What factors influence the use of advance directives by Baby Boomers in South Australia?

Outcome measures

• Comparison of palliative care outcome measures used to assess the quality of palliative care provided in residential aged care facilities: A systematic review
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Patient outcomes in palliative care – a national perspective of malignant and non-malignant diseases

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Paediatrics

• Improving paediatric palliative care for rural and remote families: A randomised controlled pilot study of videotelephony (41kb pdf)
• Memory making in neonatal end-of-life care
• So many questions
• Speech-language pathology in paediatric palliative care: A scoping review of role and practice

Pain

• Cancer pain education for patients
• Opioid Conversion Ratios: Is there an Australian consensus (43kb pdf)
• Spaced education in the specialist palliative care setting: Exploring its potential to improve pain management
• STrategies to decrease pain thrOugh implementing a duel clinical PAIN PATHway. Stop Pain Path Phase 1
• What are the decision-making processes that underpin the self-management of persistent pain?

Pain: Pharmacology

• A double-blind, dose-ranging study to determine the optimal dose of oral morphine or oxycodone needed to treat breakthrough pain for people on regular opioid in the palliative care setting. (14kb pdf)
• A randomised, double-blind placebo controlled study of subcutaneous ketamine in the management of cancer pain
•  A randomised, open-label, single centre, cross-over study to assess the safety and efficacy of methoxyflurane (PenthroxTM) for the treatment of incident pain in patients undergoing radiotherapy
• Retrospective and prospective audit of gabapentin and pre-gablin prescribing for neuropathic pain in a major cancer hospital (39kb pdf)

Paramedics

• Evaluation of a Palliative Care Telehealth Service with the Queensland Ambulance Service (QAS) (167kb pdf)
• Expectations and barriers in the ambulance service and palliative care interface

Patient, carer training

• Group education program for family caregivers of home based palliative care patients

Patients

• Determining eHealth literacy levels
• Evaluation of a volunteer-based client biography service (25kb pdf)
• Needs based access to specialist palliative care services: Development and preliminary evaluation of a Consumer Toolkit 
• Palliative care -life space assessment (PC-LSA) validation
• The Psychosocial Impact of Food and Nutrition on Palliative Care Patients and their Carers
• Trial of supportive care strategies for cancer patients in NSW (21kb pdf)
• Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer (15kb pdf)
• What are the decision-making processes that underpin the self-management of persistent pain?
• Who grieves? The patient perspective

People with dementia

• Decision making frameworks in advanced dementia: links to improved care
• Evaluation of an information booklet for family carers of people with dementia
• Improving the welfare and end of life experience for residents, families and staff: A case conferencing approach for older people living with advanced dementia or mental illness
• Living and dying at home with dementia: who decides? (22kb pdf)
• Palliative care dementia interface: enhancing community capacity
• Prescribing considerations for home oxygen use
• REACH out in Dementia
• The long goodbye

Pharmacists

• Improving medication management of palliative care patients: Enhancing the role of community pharmacists

Place of death

• Dying in the place of choice: End of life care in private hospitals
• End of life care in an urban emergency department: Optimising the care delivered for patients when death occurs in emergency departments

Policy

• Enhancing community knowledge and engagement with law at the end of life
• Futile treatment at the end of life: legal, policy, sociological and economic perspectives
• Northern Hospice Feasibility Study, Final Report, Department of Health and Human Services Tasmania

Prescribing

• Anonymous survey study examining acceptability and preferences for route of administration in a future clinical trial
• Prescribing considerations for home oxygen use

Professional and service issues

• A systematic review of patient report of deathbed phenomena
• Evaluation of a volunteer-based client biography service (25kb pdf)

Psychological issues

• “Finding Hope and Meaning at a time of Uncertainty” (33kb pdf)
• Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial
• Toward the identification and minimisation of depression and psychological distress in family caregivers of people receiving palliative care

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Quality process

• A structured approach to evidence based quality improvement for palliative care
• Calvary Hoarding and Squalor Project
• Evaluation of a Palliative Care Telehealth Service with the Queensland Ambulance Service (QAS) (167kb pdf)

• Palliative Care Outcomes Collaboration
• Retrospective medical record audit and analysis of the clinical journeys of 100 consecutive deaths for any oncology patient at St. George Hospital

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Research methods

• An international multi-centre validation study of a pain classification system for advanced cancer pain
• CareSearch Engagement Activity (264kb pdf)
• Exploration of the requirements and feasibility for a Victorian Palliative Care Research Collaborative

Respiratory secretions

• Developing self management strategies to reduce avoidable Emergency Department presentations for chronic refractory breathlessness: a strengths based approach using qualitative methods

Rural and remote

• Adelaide Hills Palliative Care Project (National Rural Palliative Care Program)
• Evaluation of the Rural Palliative Care Program
• How do GPs provide palliative care in rural and remote Queensland? (41kb pdf)
• Improving paediatric palliative care for rural and remote families: A randomised controlled pilot study of videotelephony (41kb pdf)
• Living and dying at home in rural Australia: the district nursing role of advocacy

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Site of care: Home

• Evaluation of a tool for general practitioners:  Helping Patients And Families Plan For An Expected Home Death:  The GP’s Checklist
• Home-based care for advanced cancer patients: the impact on family carers
• Living and dying at home with dementia: who decides? (22kb pdf)
• Prescribing considerations for home oxygen use
• What role do Death Doulas play in end of life care? (196kb pdf)

Site of care: Hospital

• End of life care for patients with dementia in hospital
• End of life care in an urban emergency department: Optimising the care delivered for patients when death occurs in emergency departments
• Implementing principles of end-of-life care in acute care settings
• Non-beneficial treatments (NBTs) in hospital at the end of life
• Pre-existing risk factors for in-hospital death among older patients could be used to initiate end-of-life discussions rather than Rapid Response System calls: A case-control study
• Validation of a clinical tool to predict death in older patients presenting at hospital emergency departments

Site of care: Hostel

• A palliative approach for people with declining health, living in hostel accommodation: the state of play

Site of care: RAC

• A palliative approach for people with declining health, living in hostel accommodation: the state of play
• Comparison of palliative care outcome measures used to assess the quality of palliative care provided in residential aged care facilities: A systematic review
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Evaluation of the Living Well Dying Well (LWDW) pilot program and the Cradle Coast Connected Care Electronic Health Record (4CEHR) system, Final Report, Department of Health and Human Services Tasmania
• Implementation of a comprehensive evidence based palliative approach in residential aged care (CEBPRAC)
• National Specialist Palliative Care and Advance Care Planning Advisory Services Project (Decision Assist)
• Palliative nursing in residential aged care
• Residential - Palliative Approach Competency Study (R-PAC Study)
• The Experience of Punjabi Indians with Palliative Care at Residential Aged Care Facilities: A Regional Perspective (202kb pdf)
• The impact on mental health of frequent deaths that occur in high care in aged care settings, on individuals and the resident community
• What is the effect of Transitioning Hospice patients in the end stages of their life to Residential Aged Care Facilities?

Skin/Wound care

• A phenomenological exploration of the lived experience of malignant wounds from the perspective of patients, carers and nursing staff.

Sleeping problems

• The SAC Study - Sleep in Australian Caregivers: Evaluating the sleep disturbances of adults caring for a person living with advanced cancer in the community

Specific populations

• Calvary Hoarding and Squalor Project
• Exploring the palliative care needs of veterans at home

Stroke

• Development of the Stroke Search Filter

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Teams

• Integration, coordination and multidisciplinary care - Findings from the literature

Tools and measures

• An international multi-centre validation study of a pain classification system for advanced cancer pain
• Assessing the impact of 'catastrophizing' on the measurement of pain intensity in cancer patients
• Assessment of post-operative pain management in patients undergoing surgery in a cancer hospital: An audit using the VQC Pain Assessment Tool-kit
• Implementing principles of end-of-life care in acute care settings
• Palliative care -life space assessment (PC-LSA) validation
• Sedation and analgesia in unconscious palliative care patients: can BIS monitoring add to our understanding
• Spaced education: As a tool to help translate pain assessment and management evidence into routine cancer care practice
• Validation of a clinical tool to predict death in older patients presenting at hospital emergency departments

Transitions

• A comprehensive discharge planning strategy to enhance hospital-to-home transition for patients with life limiting illness: optimizing communication across primary-secondary settings (16kb pdf)

Last updated 16 March 2020