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COVID-19
Aged Care
Allied Health
COVID-19 Resource Exchange
Diverse Populations
GPs and Primary Care
Hospitals
Nurses
Paediatrics
Research
Specialist Palliative Care
COVID-19 Highlighted Resources
Patients and Carers
Introduction for Patients
Introduction for Carers
Introduction for Families
What is Palliative Care
Who Provides Palliative Care
Referring to Palliative Care
How to Care
Who is a Carer?
Issues in Caring
If You Cannot Continue In The Caring Role
Young People Provide Care Too
Looking After Yourself
Managing Daily Life
Symptoms and Medicines
Symptoms
Pain
Managing Medicines
Supporting Carers
Coming Home When Someone is Ill
Coping with Long Distance Caring
How You Can Help
Tips For Visitors
What to Say
Carer Needs Tool
Videos
Videos (Multicultural)
Living with Illness
Changes Over Time
Complementary Therapies
Continuing To Work
Emotional Challenges
Anxiety and Depression
The Hard Thing About Being Cared For
Would it Help to Talk to Someone?
Managing Finances
Spirituality
Why is Communication Important?
Communicating With Health Professionals
Difficult Conversations
Family Communication
Talking With Children
Advance Care Planning
At the End
Changes at the Time of Death
Bereavement, Grief and Loss
Children and Grief and Loss
Grief and Loss Resources
Grief and Sadness
Loss of a Child
Relationship Loss
Remembering
Using Online Information
Using Information
Is it Trustworthy?
Sources of Information
Specific Groups
Aboriginal and Torres Strait Islander People
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectual Disability
Living Alone
Mental Illness
Multicultural
Other Languages
Older People
Children and Adolescents
Prisoners and Their Families
Refugees and Asylum Seekers
Rural and Remote
Young Carers
Finding Services
Palliative Care Services
National Resources
Disease-Specific Resources
Services and Support
State Resources
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Support Groups
A Palliative Care Booklet for Patients Carers and Families
COVID-19
For People With Palliative Care Needs
People at High Risk for Severe Infection
Finding Information
Life, Hope & Reality
Introduction
How to use Life, Hope and Reality
About cancer
Physical Needs
Always Tired?
What may help
Can't Sleep?
What may help
Worried about pain?
What may help
Pain relief
Know your doses
Trouble breathing?
What may help
Experiencing Bowel Problems?
What may help
Changes in diet
Exercise
Feeling sick?
What may help
Meals
Lost your appetite?
What may help
Trouble getting around?
What may help
What may help cont.
Considering further treatment?
What may help
Looking for other treatment?
What may help
Do your homework
Sick of hospitals?
What may help
Emotional Needs
Feeling anxious?
What may help
Feeling depressed?
What may help
Lost hope?
What may help
What about intimacy and sex?
What may help
What about dignity?
What may help
Not thinking clearly?
What may help
Social Needs
Social support
What may help
Relationships
What may help
Talking to family and friends
What may help
Talking to health professionals
What may help
Cultural differences
What may help
Language barriers
What may help
Spirituality
What may help
Lifestyle
Diet
What may help
Exercise
What may help
Work and leisure
What may help
Finances
Costs and expenses
What may help
Paying the bills
What may help
Caregiver benefits
What may help
End of Life
Advanced care planning
What may help
Other decisions
What may help
Making the will
What may help
Organ donation
What may help
A desire to die
What may help
The People who Care
Physical health
What may help
Mental health
What may help
Social effects
What may help
Financial effects
What may help
Access to information
What may help
Effect on families
What may help
Practical matters
What may help
Palliative Care
What is it?
Where is it provided?
Who provides it?
Professional health workers
Specialist teams or services
When and why should I use it?
How much will it cost?
Is it right for me?
How do I get access to care?
What may help
Useful Self Assessment Tools
Glossary
Glossary C-G
Glossary H-L
Glossary M-O
Glossary P-R
Glossary S-Z
Print Options
Need Help Now?
Health Professionals
GPs
Patient Assessment
Identifying Palliative Care Needs
Assessing Prognosis
Assessing Symptoms
Assessing Distress
Assessing Family and Caregivers
Planning Care
Communication
Communication Starters
Sharing Care
Advance Care Planning
Planning for a Home Death
Residential Aged Care
Symptoms
Appetite
Bowels
Breathing
Delirium
Fatigue
Nausea and Vomiting
Pain
Sleep
Clinical Decisions
Managing Opioids
Procedures and Investigations
The Deteriorating Patient
Emergencies
Syringe Drivers
Psychosocial Complexity
Refractory Problems
The Dying Patient
Assessing the Dying Patient
End of Life Symptoms
Supporting Families and Caregivers
Bereavement
Following up the Bereaved
Practice Management
Prescribing
Reimbursement
Professional Practice
Self-Care
Ongoing Education
Resources
GP Resources by Topic
Printable Patient Resources
Finding Literature and Evidence about GPs
Aboriginal and Torres Strait Islander Care
Culturally Safe and Responsive Care
Developing Your Knowledge and Skills
The Care Journey
Why it's Important to Ask
Understanding the Care Context
Working Together
Palliative Care Approach
Person-Centred Care
Talking Together
Creating a Caring Environment
Changing Your Care Approach
Resources for the Aboriginal and Torres Strait Islander Health Workforce
Caring for Yourself
Relevant Health Organisations
Patient, Family and Community Journeys
What’s Happening to me?
How do I Provide Care for my Family and Community?
Where Can I Find Help?
Online Information and Stories
Research, Evidence and Practice
National Responses
Aboriginal and Torres Strait Islander Peoples Palliative Care Resource Kit
About the Section
Acknowledgement of Country
Allied Health
Allied Health and Palliative Care
Roles of Allied Health Professionals
Dietitians
Music Therapists
Occupational Therapists
Physiotherapists
Psychologists
Social Workers
Speech Pathologists
New to Palliative Care?
Practice Settings
About the Allied Health Section
Getting Started with CareSearch Resources
Interdisciplinary Teams
Communication
Competencies
Multidisciplinary Care
Working Boundaries
Working with Patients, Carers and Families
Adapting Goals
Discussing Palliative Care
Professional Boundaries
Responding to Strong Emotions
When a Patient Dies
Working with Families
Information for Patients, Carers and Families
Resources for Patients, Carers and Families
Clinical Considerations
Advance Care Planning
Care of the Spirit
Complementary Therapies
Helping to Maintain Hope
Managing Symptoms
Psycho-social Assessment
Self-care
Evidence, Quality, Standards and Affordability
Allied Health Evidence
Policy, Quality, Standards and Affordability
Research
Allied Health Search
Professional Development
Continuing Professional Development
Educating Others
Journal Club
Networking
Reflective Practice
Clinical and Education Resources
Allied Health Videos
Podcasts, Presentations, Posters and Abstracts
Stories
Disease Specific Information
Cancer Cachexia
Motor Neurone Disease
Nurses
Nurses Providing Palliative Care
Improving Practice
Nurse Practitioners
Palliative Care Nursing
Clinical
Advance Care Planning
After Death Care
After a Death at Home
Care of the Body
Religious and Cultural Considerations
Tissue Donation
Care of the Spirit
Communication
Complementary Therapies
End-of-Life Care
Ethical Issues
Symptoms and Medication Management
Symptom Management
Evidence for Medications
Palliative Medications
Prescribing Resources
The Role of the Carer
Managing Fungating Wounds
Multidisciplinary Team
Self-Care
Contributing Factors
Self-care Strategies
Working with Families
Family Meetings
Supporting Carers
Areas of Practice
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectually Disabled
Living Alone
Mental Illness
Multicultural
Paediatrics (Specific Populations)
Prisoners
Refugees and Asylum Seekers
Rural and Remote (Specific Populations)
Aboriginal and Torres Strait Islander People
Aged Care and Dementia
HIV / AIDS
Hospital
Multicultural Areas of Practice
Non-malignant / End Stage Disease
Oncology
Paediatrics
Adolescents and Young Adults (AYA)
Neonates
Primary Care / Community
Rural and Remote
Care and Service Implementation
EBP / QI / Research / Audit
Evidence
Evidence-Based Practice
Research
Critical Incident Analysis
Education
Journal Club
Providing Education
Basic Training
Policy, Quality, Standards
Policy and Planning
Public Health Palliative Care
Quality
Standards
Tools for Nurses in Palliative Care
Residential Aged Care
Researchers
Getting Started in Palliative Care Research
The Research Context
Planning the Study
Involving Consumers in Research
Study Design
Protocol Development
Practical Considerations in Planning a Study
Obtaining Funding
Ethics Approval
Trial Registration
Finding Out More
Grants
Conducting the Study
The Research Team
Multi-site Research
Data Management
Governance
The Findings
Disseminating the Results
Authorship Arrangements
Publication
Knowledge Translation
Research Studies Register
Studies by Investigator
Studies by Topic
Research Data Management System
About the Research Data Management System
Clinical Evidence
Advance Care Planning
Patient Care and Conditions
Advanced Dementia
Appetite Problems
Cachexia Anorexia Syndrome
Appetite Stimulants
Nutritional Support
Anxiety
Bereavement and Grief
Abnormal Grief
Bereavement PubMed Searches
Create Your Own Bereavement PubMed Search
Care of the Dying Person
Complementary Therapies
Constipation
Pharmacological Management
Delirium
Pharmacological Management
Non-pharmacological Management
Depression
Fatigue
Heart Failure
Models of Service Delivery
Nausea
Antiemetics
Malignant Bowel Obstruction
Pain
Barriers to Pain Management
Pain Assessment
Opioid Analgesics
Non-opioid analgesics
Non Pharmacological Approaches
Radiation and Interventional Pain Management
Recognising Last Year of Life
Respiratory Symptoms
Cough
Dyspnoea
Haemoptysis
Obstruction
Respiratory Secretions
Self-Care
Clinician Stress and Burnout
Sleeping Problems
Social Support
Suffering
Existential Distress
Dignity Conserving Care
Carer Evidence
Carers
Perspectives on Family Carers
Supporting Carers
Resources For, and About, Carers
Finding Evidence
Why is Evidence Important?
What is Evidence?
Consumer Participation
Appraising Evidence
Applying Evidence
Knowledge Translation
Journal Club Basics
About Evidence
Searching for Evidence
Databases and Resources
Learning to Search
Using Search Filters
About the Palliative Care Search Filter
About the Heart Failure Search Filter
About the Dementia Search Filter
About the RAC Search Filter
Systematic Searching
Searching the Web
Selecting Search Engines
Using Search Engines
Evaluating Quality
Open Access
Specialist Palliative Care Journals
Acronyms and Abbreviations
Using Evidence in Practice
Identifying the Need to Change
Implementing Change
Measuring Change
PubMed Searches
Create Your Own PubMed Search
Information About CareSearch PubMed Searches
Technical Notes
Palliative Care Filter Effectiveness Study
Lung Cancer Search Filters
Information About Lung Cancer PubMed Searches
Non Small Cell Lung Cancer PubMed Searches
Lung Cancer and Palliative Care PubMed Searches
Create Your Own Lung Cancer PubMed Search
Heart Failure PubMed Searches
Economic Searches
Costs of Bereavement Care Searching
Other Costs of Bereavement Care Searching Resources
Costs of Dementia Care Searching
Other Costs of Dementia Care Searching Resources
Costs of Lung Cancer Care Searching
Other Costs of Lung Cancer Care Searching Resources
Costs of Primary Health Care Searching
Other Costs of Primary Health Care Searching Resources
Other Economic Search Resources
Residential Aged Care (RAC) Searches
Dementia in RAC
Create your own RAC searches
Grey Literature
Grey Literature Database
Search Literature
Frequently Asked Questions
Quality Improvement
Australian Quality Improvement Support
Appraising QI Reports and Studies
Theses
Systematic Review Collection
Latest Reviews
Procedures
Latest Australian Research
In Focus
Digital Health
Nursing and Palliative Care in Numbers
From Evidence to Better Pain Management
Supporting our Carers
Palliative Care Education
Quality Palliative Care is Evidence Based
CareSearch 2019
CareSearch 2018
Education
Health Professional Options
Major Education Initiatives
Formal Qualifications
Conferences
Short Courses and Workshops
eLearning
Clinical Experiences
Case Studies
Palliative Care Community Pharmacy Updates
Careworkers, Carers and Volunteers
Careworker Learning
Carers Learning
Volunteer Learning
Community Education
Workforce Development
Resources for Workforce Development
My Learning
About CareSearch
CareSearch Portal Project
Participate
Signup
CareSearch Portal Launch
Part of Life Project
CareSearch Project
CareSearch Model
CareSearch and Evidence
Evaluation and Program Logic
Quality Processes and HONcode
CareSearch Products
CareSearch Publications
Dying2Learn What Next
Engagement Project
Engagement Project Feedback Form
My Information Kit
RAC Hub Project
Acknowledgements
Working in Partnership
Using CareSearch
Palliative Care in Australia
Major Projects
Advance Care Planning Australia
The Advance Project
CarerHelp
What is the Australian Family Carer Toolkit Project
CareSearch
caring@home
Comprehensive Palliative Care in Aged Care Measure
End of Life Directions for Aged Care (ELDAC)
End-of-Life Essentials
End of Life Law for Clinicians
Gwandalan Project
Improving palliative care services for people with an intellectual disability
PaCCSC Project
PaCSA
palliAGED
Palliative Care Education & Training Collaborative
Palliative Care in Prisons
Palliative Care Online Training
Palliative Care Outcomes Collaboration
Psychosocial and Existential Wellbeing in Palliative Care
Quality of Care Collaborative in Paediatric PC
Talking End of Life...with people with intellectual disability (TEL)
The National LGBTI Health Alliance Project
Other Projects
News
Newsletters
CareSearch News
What's New in the Community
Latest Journal Articles
CareSearch Blog
Order Resources
Contact CareSearch
Project Feedback Form
X
Home
COVID-19
Aged Care
Allied Health
COVID-19 Resource Exchange
Diverse Populations
GPs and Primary Care
Hospitals
Nurses
Paediatrics
Research
Specialist Palliative Care
COVID-19 Highlighted Resources
Patients and Carers
Introduction for Patients
Introduction for Carers
Introduction for Families
What is Palliative Care
Who Provides Palliative Care
Referring to Palliative Care
How to Care
Who is a Carer?
Issues in Caring
If You Cannot Continue In The Caring Role
Young People Provide Care Too
Looking After Yourself
Managing Daily Life
Symptoms and Medicines
Symptoms
Pain
Managing Medicines
Supporting Carers
Coming Home When Someone is Ill
Coping with Long Distance Caring
How You Can Help
Tips For Visitors
What to Say
Carer Needs Tool
Videos
Videos (Multicultural)
Living with Illness
Changes Over Time
Complementary Therapies
Continuing To Work
Emotional Challenges
Anxiety and Depression
The Hard Thing About Being Cared For
Would it Help to Talk to Someone?
Managing Finances
Spirituality
Why is Communication Important?
Communicating With Health Professionals
Difficult Conversations
Family Communication
Talking With Children
Advance Care Planning
At the End
Changes at the Time of Death
Bereavement, Grief and Loss
Children and Grief and Loss
Grief and Loss Resources
Grief and Sadness
Loss of a Child
Relationship Loss
Remembering
Using Online Information
Using Information
Is it Trustworthy?
Sources of Information
Specific Groups
Aboriginal and Torres Strait Islander People
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectual Disability
Living Alone
Mental Illness
Multicultural
Other Languages
Older People
Children and Adolescents
Prisoners and Their Families
Refugees and Asylum Seekers
Rural and Remote
Young Carers
Finding Services
Palliative Care Services
National Resources
Disease-Specific Resources
Services and Support
State Resources
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Support Groups
A Palliative Care Booklet for Patients Carers and Families
COVID-19
For People With Palliative Care Needs
People at High Risk for Severe Infection
Finding Information
Life, Hope & Reality
Introduction
How to use Life, Hope and Reality
About cancer
Physical Needs
Always Tired?
What may help
Can't Sleep?
What may help
Worried about pain?
What may help
Pain relief
Know your doses
Trouble breathing?
What may help
Experiencing Bowel Problems?
What may help
Changes in diet
Exercise
Feeling sick?
What may help
Meals
Lost your appetite?
What may help
Trouble getting around?
What may help
What may help cont.
Considering further treatment?
What may help
Looking for other treatment?
What may help
Do your homework
Sick of hospitals?
What may help
Emotional Needs
Feeling anxious?
What may help
Feeling depressed?
What may help
Lost hope?
What may help
What about intimacy and sex?
What may help
What about dignity?
What may help
Not thinking clearly?
What may help
Social Needs
Social support
What may help
Relationships
What may help
Talking to family and friends
What may help
Talking to health professionals
What may help
Cultural differences
What may help
Language barriers
What may help
Spirituality
What may help
Lifestyle
Diet
What may help
Exercise
What may help
Work and leisure
What may help
Finances
Costs and expenses
What may help
Paying the bills
What may help
Caregiver benefits
What may help
End of Life
Advanced care planning
What may help
Other decisions
What may help
Making the will
What may help
Organ donation
What may help
A desire to die
What may help
The People who Care
Physical health
What may help
Mental health
What may help
Social effects
What may help
Financial effects
What may help
Access to information
What may help
Effect on families
What may help
Practical matters
What may help
Palliative Care
What is it?
Where is it provided?
Who provides it?
Professional health workers
Specialist teams or services
When and why should I use it?
How much will it cost?
Is it right for me?
How do I get access to care?
What may help
Useful Self Assessment Tools
Glossary
Glossary C-G
Glossary H-L
Glossary M-O
Glossary P-R
Glossary S-Z
Print Options
Need Help Now?
Health Professionals
GPs
Patient Assessment
Identifying Palliative Care Needs
Assessing Prognosis
Assessing Symptoms
Assessing Distress
Assessing Family and Caregivers
Planning Care
Communication
Communication Starters
Sharing Care
Advance Care Planning
Planning for a Home Death
Residential Aged Care
Symptoms
Appetite
Bowels
Breathing
Delirium
Fatigue
Nausea and Vomiting
Pain
Sleep
Clinical Decisions
Managing Opioids
Procedures and Investigations
The Deteriorating Patient
Emergencies
Syringe Drivers
Psychosocial Complexity
Refractory Problems
The Dying Patient
Assessing the Dying Patient
End of Life Symptoms
Supporting Families and Caregivers
Bereavement
Following up the Bereaved
Practice Management
Prescribing
Reimbursement
Professional Practice
Self-Care
Ongoing Education
Resources
GP Resources by Topic
Printable Patient Resources
Finding Literature and Evidence about GPs
Aboriginal and Torres Strait Islander Care
Culturally Safe and Responsive Care
Developing Your Knowledge and Skills
The Care Journey
Why it's Important to Ask
Understanding the Care Context
Working Together
Palliative Care Approach
Person-Centred Care
Talking Together
Creating a Caring Environment
Changing Your Care Approach
Resources for the Aboriginal and Torres Strait Islander Health Workforce
Caring for Yourself
Relevant Health Organisations
Patient, Family and Community Journeys
What’s Happening to me?
How do I Provide Care for my Family and Community?
Where Can I Find Help?
Online Information and Stories
Research, Evidence and Practice
National Responses
Aboriginal and Torres Strait Islander Peoples Palliative Care Resource Kit
About the Section
Acknowledgement of Country
Allied Health
Allied Health and Palliative Care
Roles of Allied Health Professionals
Dietitians
Music Therapists
Occupational Therapists
Physiotherapists
Psychologists
Social Workers
Speech Pathologists
New to Palliative Care?
Practice Settings
About the Allied Health Section
Getting Started with CareSearch Resources
Interdisciplinary Teams
Communication
Competencies
Multidisciplinary Care
Working Boundaries
Working with Patients, Carers and Families
Adapting Goals
Discussing Palliative Care
Professional Boundaries
Responding to Strong Emotions
When a Patient Dies
Working with Families
Information for Patients, Carers and Families
Resources for Patients, Carers and Families
Clinical Considerations
Advance Care Planning
Care of the Spirit
Complementary Therapies
Helping to Maintain Hope
Managing Symptoms
Psycho-social Assessment
Self-care
Evidence, Quality, Standards and Affordability
Allied Health Evidence
Policy, Quality, Standards and Affordability
Research
Allied Health Search
Professional Development
Continuing Professional Development
Educating Others
Journal Club
Networking
Reflective Practice
Clinical and Education Resources
Allied Health Videos
Podcasts, Presentations, Posters and Abstracts
Stories
Disease Specific Information
Cancer Cachexia
Motor Neurone Disease
Nurses
Nurses Providing Palliative Care
Improving Practice
Nurse Practitioners
Palliative Care Nursing
Clinical
Advance Care Planning
After Death Care
After a Death at Home
Care of the Body
Religious and Cultural Considerations
Tissue Donation
Care of the Spirit
Communication
Complementary Therapies
End-of-Life Care
Ethical Issues
Symptoms and Medication Management
Symptom Management
Evidence for Medications
Palliative Medications
Prescribing Resources
The Role of the Carer
Managing Fungating Wounds
Multidisciplinary Team
Self-Care
Contributing Factors
Self-care Strategies
Working with Families
Family Meetings
Supporting Carers
Areas of Practice
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectually Disabled
Living Alone
Mental Illness
Multicultural
Paediatrics (Specific Populations)
Prisoners
Refugees and Asylum Seekers
Rural and Remote (Specific Populations)
Aboriginal and Torres Strait Islander People
Aged Care and Dementia
HIV / AIDS
Hospital
Multicultural Areas of Practice
Non-malignant / End Stage Disease
Oncology
Paediatrics
Adolescents and Young Adults (AYA)
Neonates
Primary Care / Community
Rural and Remote
Care and Service Implementation
EBP / QI / Research / Audit
Evidence
Evidence-Based Practice
Research
Critical Incident Analysis
Education
Journal Club
Providing Education
Basic Training
Policy, Quality, Standards
Policy and Planning
Public Health Palliative Care
Quality
Standards
Tools for Nurses in Palliative Care
Residential Aged Care
Researchers
Getting Started in Palliative Care Research
The Research Context
Planning the Study
Involving Consumers in Research
Study Design
Protocol Development
Practical Considerations in Planning a Study
Obtaining Funding
Ethics Approval
Trial Registration
Finding Out More
Grants
Conducting the Study
The Research Team
Multi-site Research
Data Management
Governance
The Findings
Disseminating the Results
Authorship Arrangements
Publication
Knowledge Translation
Research Studies Register
Studies by Investigator
Studies by Topic
Research Data Management System
About the Research Data Management System
Clinical Evidence
Advance Care Planning
Patient Care and Conditions
Advanced Dementia
Appetite Problems
Cachexia Anorexia Syndrome
Appetite Stimulants
Nutritional Support
Anxiety
Bereavement and Grief
Abnormal Grief
Bereavement PubMed Searches
Create Your Own Bereavement PubMed Search
Care of the Dying Person
Complementary Therapies
Constipation
Pharmacological Management
Delirium
Pharmacological Management
Non-pharmacological Management
Depression
Fatigue
Heart Failure
Models of Service Delivery
Nausea
Antiemetics
Malignant Bowel Obstruction
Pain
Barriers to Pain Management
Pain Assessment
Opioid Analgesics
Non-opioid analgesics
Non Pharmacological Approaches
Radiation and Interventional Pain Management
Recognising Last Year of Life
Respiratory Symptoms
Cough
Dyspnoea
Haemoptysis
Obstruction
Respiratory Secretions
Self-Care
Clinician Stress and Burnout
Sleeping Problems
Social Support
Suffering
Existential Distress
Dignity Conserving Care
Carer Evidence
Carers
Perspectives on Family Carers
Supporting Carers
Resources For, and About, Carers
Finding Evidence
Why is Evidence Important?
What is Evidence?
Consumer Participation
Appraising Evidence
Applying Evidence
Knowledge Translation
Journal Club Basics
About Evidence
Searching for Evidence
Databases and Resources
Learning to Search
Using Search Filters
About the Palliative Care Search Filter
About the Heart Failure Search Filter
About the Dementia Search Filter
About the RAC Search Filter
Systematic Searching
Searching the Web
Selecting Search Engines
Using Search Engines
Evaluating Quality
Open Access
Specialist Palliative Care Journals
Acronyms and Abbreviations
Using Evidence in Practice
Identifying the Need to Change
Implementing Change
Measuring Change
PubMed Searches
Create Your Own PubMed Search
Information About CareSearch PubMed Searches
Technical Notes
Palliative Care Filter Effectiveness Study
Lung Cancer Search Filters
Information About Lung Cancer PubMed Searches
Non Small Cell Lung Cancer PubMed Searches
Lung Cancer and Palliative Care PubMed Searches
Create Your Own Lung Cancer PubMed Search
Heart Failure PubMed Searches
Economic Searches
Costs of Bereavement Care Searching
Other Costs of Bereavement Care Searching Resources
Costs of Dementia Care Searching
Other Costs of Dementia Care Searching Resources
Costs of Lung Cancer Care Searching
Other Costs of Lung Cancer Care Searching Resources
Costs of Primary Health Care Searching
Other Costs of Primary Health Care Searching Resources
Other Economic Search Resources
Residential Aged Care (RAC) Searches
Dementia in RAC
Create your own RAC searches
Grey Literature
Grey Literature Database
Search Literature
Frequently Asked Questions
Quality Improvement
Australian Quality Improvement Support
Appraising QI Reports and Studies
Theses
Systematic Review Collection
Latest Reviews
Procedures
Latest Australian Research
In Focus
Digital Health
Nursing and Palliative Care in Numbers
From Evidence to Better Pain Management
Supporting our Carers
Palliative Care Education
Quality Palliative Care is Evidence Based
CareSearch 2019
CareSearch 2018
Education
Health Professional Options
Major Education Initiatives
Formal Qualifications
Conferences
Short Courses and Workshops
eLearning
Clinical Experiences
Case Studies
Palliative Care Community Pharmacy Updates
Careworkers, Carers and Volunteers
Careworker Learning
Carers Learning
Volunteer Learning
Community Education
Workforce Development
Resources for Workforce Development
My Learning
About CareSearch
CareSearch Portal Project
Participate
Signup
CareSearch Portal Launch
Part of Life Project
CareSearch Project
CareSearch Model
CareSearch and Evidence
Evaluation and Program Logic
Quality Processes and HONcode
CareSearch Products
CareSearch Publications
Dying2Learn What Next
Engagement Project
Engagement Project Feedback Form
My Information Kit
RAC Hub Project
Acknowledgements
Working in Partnership
Using CareSearch
Palliative Care in Australia
Major Projects
Advance Care Planning Australia
The Advance Project
CarerHelp
What is the Australian Family Carer Toolkit Project
CareSearch
caring@home
Comprehensive Palliative Care in Aged Care Measure
End of Life Directions for Aged Care (ELDAC)
End-of-Life Essentials
End of Life Law for Clinicians
Gwandalan Project
Improving palliative care services for people with an intellectual disability
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The Role of Music Therapy in Addressing Anxiety in Palliative Care – Part One
A guest blog post by Andrea Bryk, Registered Music Therapist, Peninsula Home Hospice
24 August 2017
Author:
CareSearch
Number of views: 7738
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As a registered music therapist working in palliative care, [1,2] one of the most common referrals is to address client anxiety. Anxiety can present itself in many forms; loss of sleep, foggy thinking, or inability to focus. Anxiety amplifies many physiological symptoms such as shortness of breath, dizziness, and pain. Often, patients who need oxygen or have Chronic Obstructive Pulmonary Disease (COPD) have a perceived risk of death that naturally increases anxiety.
Psychologically, a client can be caught in a spiral of thinking about what lies in the future (reinforced by a schedule of medical appointments, treatment, scans, outcomes, follow-ups) and pondering questions that cannot be answered with any degree of certainty. So much focus is placed on the person's physical response to medical interventions while there is an unbalanced proportion of attention to the health of the mind. In addition, these clients can be living in an overstimulating environment or have a history of limited resilience building.
In my experience, the indications of anxiety are usually obvious and present to other members of the interdisciplinary team and lead to a referral to music therapy. The Edmonton Symptom Assessment Scale (ESAS) provides healthcare workers a measure of symptoms such as anxiety. Generally, interventions are suggested for clients whose anxiety is above 3/10 on the scale.
Whilst there seems to be numerous barriers to overcoming anxiety, these clients, predictably, often have a vivid imagination and astute focus. The paradox is that some of the traits that can cause suffering can be used very productively on the other end of the spectrum to create a great sense of calm and well-being. Changing the focus from imagining what the future holds to noticing comfort in the present moment and redirecting attention to a space of safety and comfort is usually the key to decreasing anxiety. [2] Music therapy interventions, specifically the use of music based relaxation programs, can provide an anxious person the opportunity to experience peace in the moment. [3] Imagery, including a simple visualisation helps the brain to become focused. The music can provide a comfortable and supportive grounding. [4,5] Music Therapy has been shown to have a significant effect on decreasing anxiety in palliative care settings.
The typical care plan goals for an anxious client include:
decreasing or managing anxiety symptoms
providing a sense of comfort and grounding
identifying psychological support
educating on the use of coping mechanisms
the importance of balance in body and mind.
It is essential to develop trust with the client. I often use the power of suggestion to motivate a shift in thinking, and agree on the aims of the program together. For example, after a music relaxation intervention, I might suggest they will sleep better or notice a change in how they go about daily activities.
The following points are identified in the assessment phase:
history of relaxation/meditation/mindfulness practice
previous coping mechanisms
the person's response and connection to music.
It is important to ascertain the need to:
validate the use of music therapeutically
provide education regarding healthy/unhealthy uses of music
offer guidance when self-discipline is a challenge
recommend additional psychological support in tandem with music therapy.
Due to the nature of community home visits and long periods between sessions, I can provide resources for private use outside therapy sessions such as the use of recorded music CDs and the use of tailored, guided relaxation with music in digital format.
PART TWO of this blog will discuss the use of music based relaxation programs which can provide an anxious person the opportunity to experience peace in the moment.
References
Aldridge, D. Music Therapy in Palliative Care. Philadelphia, PA: Jessica Kingsley Pub; 1999.
Tolle, E. The Power of Now: A guide to Spiritual Enlightenment. Sydney, NSW: Hodder; 1999.
Groke, D & Wigram, T. Receptive Methods in Music Therapy. Philadelphia, PA: Jessica Kingsley Pub; 2007.
Warth, M. et al. Music therapy in palliative care. Dtsch Arztebl Int 2015; 112: 788-94.
Clements-Cortes, A. & Varvas Klinck, S. Voices of the Dying and Bereaved: Music Therapy Narratives. Dallas, TX: Barcelona Pub; 2016.
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Andrea Bryk (RMT, MMus) is a music therapist at Peninsula Home Hospice providing community palliative care services for the Mornington Peninsula area of Victoria
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