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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Who are we? The Palliative Care Outcomes Collaboration (PCOC) is a nationally funded program that uses standardised clinical assessment tools to benchmark and measure patient outcomes in palliative care.
What do we do?
The program facilitates palliative care service providers to improve patient outcomes and practice, by capturing clinically meaningful information across a patient’s disease trajectory. PCOC operates around a six month process (see Figure 1). Five clinical assessment tools are routinely completed by participating services in hospitals and in the community. The clinical assessments are entered into a database by the palliative care service, who extract and submit the data to PCOC (in January and July each year). A report, including nationally agreed outcome measures and benchmarks, is generated and returned to the service. Structured feedback is provided by Quality Improvement Facilitators who assist services to develop quality improvement initiatives, with the ultimate aim of improving patient outcomes. What are PCOC reports? The PCOC program commenced with eight palliative care services in 2006, and has since grown to include over 115 services submitting data and receiving reports. We also produce national and state level reports for each reporting cycle. The purpose of these reports is to provide the broader context of patient outcomes for palliative care in Australia. These reports are presented to national and state level organisations, for example peak bodies and Government departments. In March 2016 the state and national reports were redesigned to better meet the needs of the readers. Following distribution of the new design of reports, 151 recipients were surveyed with 87% of respondents indicating they liked the overall look of the new format and found it easy to read, understand and use. Follow this link to see the latest national report in the new format. What are benchmarking workshops? A unique feature of the PCOC program is the national benchmarking workshops. Commencing in 2007, these workshops bring participating palliative care services together on an annual basis to discuss, share and understand ways to improve patient outcomes and service delivery. They also provide an opportunity for services to feedback their activities and challenges. The most recent benchmarking workshops in June/ July brought 61 community services together to present, share and discuss benchmark information. A summary of this benchmarking workshop is available here. What is the PCOC toolkit? We have developed a new toolkit to support palliative care services and clinicians to implement and embed the PCOC program within the routine practice of their service. The toolkit is located here and includes the following:
For further information about PCOC please head to the website (www.pcoc.org.au) or email pcoc@uow.edu.au.
Jennifer Tieman
28/08/2016 9:04 AM
Thanks Karen, great summary of the PCOC program which provides such valuable data and feedback for the services and enables all of us to have a better understanding of palliative care needs and provision.
Maria Nethercott
13/01/2018 9:50 PM
Have used PCOC assessment for years in community & hospital setting. Would someone be able to explain why it is SAS does not include client distress for anxiety, psychological & existential suffering? These are COMMON issues I witness on a daily basis, yet OFTEN are not acknowledge or addressed by staff more comfortable dealing with the physical symptoms. Rarely am I asked to help to end it because of pain but MANY times someone has held my hand looked into my eyes & asked me to help end their life, when their world has shrunk to house/room/bed & their independence/automomy/meaning of life is deminished. While we fail to record & Benchmark the human experience of drying funding services in the medical model with no counselors, no mindfulness therapies & totally I inadequate allied health support will continue . Many services provide these vital services but not all. I am a nurse who has worked in a service that provided this non medical/nursing support & know the value it gives clients. Good Pal care should not depend on postcode; all people deserve care of their spirit/psychological self.